The Division of Early Childhood of the Council for Exceptional Children is an international membership organization for individuals who work with or on behalf of children with special needs, birth through age eight and their families. Most children living beyond 1st birthday and beyond will make use of many early intervention services focused on mastering developmental milestone focused on Birth2Three programs. Many community-based programs and services are available through ARC, Easter Seals and many other disability services organizations.

Chromosome 18 Registry & Research Society is a lay advocacy organization composed primarily of the parents of individuals with a chromosome 18 deletions and duplications. Disorders like 18q-, 18p-, Tetrasomy 18 comprise the largest syndrome groups.

Faith-based, Pro-life Support organization for Families with any type of adverse prenatal diagnosis who don't want to consider interrupting their pregnancy for medical reasons based on issues of faith. Supported by Catholic Pro-life groups.

On top of the very real and painful emotional process of grief, it is quite possible that you may experience the very normal feelings of [b]Postpartum Depression[b]. This site offers resources and links to assist you in connecting with the help you need to get through this time.

Provides infant bereavement photography at no charge by a national network of volunteer professional photographers. Offering gentle and beautiful photography and videography services in a compassionate and sensitive manner is the heart of this organization. The soft, gentle heirloom photographs of these beautiful babies are an important part of the healing process. They allow families to honor and cherish their babies, and share the spirits of their lives.

Bereavement support for families experiencing infant loss and looking for local support groups. Resources and Links to help with sibling grief as well as community resources for volunteer opportunities.

(Support Organization for Trisomy 18, 13, and Related Disorders) – This organization provides professional medical literature and family support and contact opportunities for those facing rare trisomy diagnoses of all types, including Trisomy 18 and 13. They produce a quarterly community newsletter and organize an annual family conference in the United States. Particularly if your trisomy child is living and you want to connect with other families with living children, this organization has drawn together a tremendous amount of resources for you.

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Founded in 1992, CDO is a non-profit organization providing information & support for Families and Professionals affected by Chromosome Deletions, Trisomies, Inversions, Translocations and Rings.

The Genetic Alliance is an international coalition comprised of millions of individuals with genetic conditions and more than 600 advocacy, research and health care organizations that represent their interests.